Advancing the National Cerebral Palsy Research Agenda
Section: Academy of Pediatric PT
Co-Section: Section on Research
Session Code: PD-2A-8125
Date: Friday, January 25, 2019
Time: 8:00 AM - 10:00 AM
Location: Marriott Marquis
Room: Independence Salon E
Session Type: Educational Sessions
Session Level: Intermediate
In the past 5 years, there have been significant national and international efforts to develop a research agenda focused on individuals with cerebral palsy (CP). The National Institute of Neurological Disorders and Stroke (NINDS) has completed the development of CP-specific CDEs and several workshops led by the National Institutes of Health (NIH) have been conducted focusing on a CP research agenda. In addition, several efforts have emerged to develop CP data registries and learning health systems that provide a foundation of data for comparative effectiveness research and computable phenotyping in CP. Many professional and research networks now exist to expand and develop the CP research agenda across these large data networks.
Learning Objectives: Upon completion of this course, you will be able to:
1. Describe the current state of evidence and research in cerebral palsy (CP).
2. Assess the role of comparative effectiveness research in developing evidence for interventions for individuals with CP.
3. Discuss research priorities based on patient-centered outcomes and electronic health record data resources.
4. Identify CP research initiatives to become engaged with post CSM.
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